Often we tend to focus on the Mums who have a child with Duchenne and the Dad’s don’t get much of a mention, I know that some mums are...

Watching my boy Grow up and get bigger is a joy but at the same time I fear for the future, Kye will be 2 years old this month and the...

I know that all of us affected in some why by DMD wonder how do we tell our boys & Girls the truth about DMD, the ugly cold hard facts...

I am amazed at how wonderful and kind my older children are with their little brother Kye, I am especially amazed at the wonderful bond...

Well in the past week we have heard of three young men who have lost their battle with DMD, these losses Bring with them a sad...

For Parents of a boy (and in rare cases girls) diagnosed with DMD the future becomes a very daunting place, there are so many things that...