ANOTHER CHILD LOST TO DUCHENNE….. We all see these posts, more often than we would like. I have been asked on many occasions why do we...

Hi everyone, I know it’s been an awful long time since I posted in our blog. It’s been a busy time for us in the last 6 months preparing...

It amazes me how ignorant people really when faced with what they call “badly behaved kids”. Well let me tell you ignorant people, not...

Duchenne is a muscle degenerative disease, meaning as the muscle weaken it progresses. This progress is different for all those with...

It often crosses my mind that many of our family and friends may see our avoidance to attend their parties or visit is because we don’t...

I HATE DUCHENNE…..These are words that are seen on social networks and heard from the mouths of parents around the globe on a daily...

This Blog is not about Duchenne. I felt this needed to be written from the view of a mother who has lost children during pregnancy, often...

In 1987 my family was given some heartbreaking, earth shattering news. My little brother who was 7 was Diagnosed with Duchenne Muscular...

Well yesterday how little man Kye had a clinic visit. These visits involve getting up around 5 am to drive 3 hours through relentless...

I often feel very in ore of single parents who are dealing with DMD daily. You are all amazing to me, I can only imagine how hard it must...