Having a child with Duchenne there are small things that really can be heartbreaking, things that are not anyone’s fault, and we are not...

It’s hard sometimes as parents of children with disabilities and special needs to feel we are doing all we can to help our children. Our...

Well our little man is growing up way too fast for my liking, we are off to Sydney for our first clinic visit next month and it’s all a...

Lately I’ve stated to noticed a difference in the way my boy Kye is walking, it’s just happened kind of suddenly, as we fast approach his...

It’s so hard to read status’s sometimes especially when a child with DMD is losing his fight to live. We are all so saddened to hear...

Recently we celebrated our son Jack’s 1st birthday, Jack does not have DMD but his Brother Kye who is 2 and a half does, while it great...

It’s hard sometimes to understand why people turn away from us when in actual fact we need them the most, Many families who live with DMD...

Something that is really annoying me in this last few days, here in Australia I have not seen a single advertisement on the Television in...

It makes me sad to think that in our DMD community there are people judging others for so many silly reasons, As far as I’m concerned the...

I just love getting up each morning and checking my Facebook page……sounds crazy but I have so, so many friends now from all over the...