The Emotional Rollercoaster
Well in the past week we have heard of three young men who have lost their battle with DMD, these losses Bring with them a sad realization that this is a path that we as parents of a child with DMD will one day also have to face!!!!!!!! It can make many of us feel depressed and down with good reason, however there is always hope and these young men who have lost their battles were true warriors in life, Yes Duchenne took their lives way too soon but they also gave so much happiness to their family & friends and I know they would have inspired so many people, the outpouring of emotion from people who including myself who did not personally know these boys is amazing and uplifting that such support is around us all who face the DMD journey, we are in this thing together and will be there to offer support and love to our extended Duchenne Family!!!
My first reaction when I hear of a another DMD warrior passing is anger, anger that DMD even exists, anger that a Cure has not yet be found, anger at how long it takes for research breakthroughs to actually benefit our boys, anger that some people just don’t understand DMD and do not want to understand it, so many people take life for granted daily! One more Warrior lost is too many, we have already lost to many, so many families are left without their beautiful loved ones and that breaks my heart, I look at my son KYE and think I don’t ever want to lose him and I hope that a cure will be found so he can live a full-life but in saying that I have meet many young men on here who are in their 30’s and are living amazing inspiring lives, life is what we make it, if we choose to down and depressed all the time then how can we be living fulfilling lives??? We can’t I know it’s very hard to stay positive especially with the events of the past week but this should make us all just fight that little bit harder to make sure our boys fit as much happiness and fulfillment into their lives because at this stage we know their time will be limited but in the future who knows there is so much happening and so much hope and with all of us fighting to beat the crap outta DMD we will get there and we will see the day Duchenne is not a disease that is diagnosed as an incurable disease but a treatable condition that can be cured !!!
The DMD Journey really is a Emotional Rollercoaster that have many ups and downs how we meet their challenges is up to us as individuals I choose to take it on with positivity and determination!!!!
RIP to the young Warriors who have sadly passed on, join our other warriors on the other side and run, jump and smile for all eternity, you are true Heroes who will be sadly missed by all who knew and loved you!
