Heartbreak Shared......
It’s so hard to read status’s sometimes especially when a child with DMD is losing his fight to live. We are all so saddened to hear about young Joshua who’s family have taken him home with only days left to spend with their beautiful precious boy. Through this tragedy and many other families who have also lost their precious children our DMD community has been strength and shown such compassion to these families, I am so proud to be a part of such an amazing online community who give so much love to families when in need. Such Beautiful comments and thoughts have been expressed, it’s a hard journey and inevitably we all at this point in time face the same End to our child’s journey and it’s hard not to think ahead to our own children’s future and wonder how much time we truly have with them, For me it’s about making every moment we do have count, to not spend one more moment on sadness relating to DMD but instead to embrace my child and fill his days on this earth with as much love and happiness humanly possible.
I recently read a beautiful status written by our amazing Ricky Tsang and it just touched my heart so much, he is a godsend to us all with his ability to put into words such wonderful wisdom, kindness & empathy: I wanted to share this with you all as I think it’s something that all parents in particular mum’s should read here is his status and you may need a tissue or two it’s very truthful and heartfelt:
Dear Mommy,
So this day has finally come, the moment of departure where we must exchange farewells. I miss you terribly, and yet I’m not suffering anymore. I wish you knew how free I am, so that your heart might not hurt as much. It already feels as though I had been running all my life, every unmet dream fulfilled. Mommy, it hurts to see you crying to others, while all you receive are empty words that leave you unfazed. You deserve more. It’s just you need to remember that it was never your fault, even when you felt completely helpless. I only blame you for always making me glad and bringing comfort into my existence. I’m eternally grateful for all the love you have given me.
No, I’m afraid. Nothing is ever getting better. Things will not be okay. You lost your son, sweetheart, and it is supposed hurt until you join me in the kingdom of heaven. Don’t expect them to understand because none actually do. You’re alone in the world right now, like I was in so many ways. Friends and family will fade, become afraid of your mourning and eventually leave and disappoint you. However, if you celebrate my life, I promise to remain at your side, no matter how many tears are shed. We will never be apart if you think of me often.
And I will teach you the way of courage, the lessons that I’ve learned. I will show you how to develop a sense of emotional independence so that you may engage while all is falling apart. You made the person that I forever will be and I want to reveal who I am, because learning from me is really learning from yourself. Together we shall reign over darkness.
You will get bad days, I guarantee, but genuine strength comes from walking past the cries of despair. It’s about moving forward, also unafraid of looking back. I hope you won’t suppress the experiences shared, even the negative. We faced everything together and overcame with dignity and grace, and laughter and smiles and weeping! Those memories belong to us; they are ours.
For the time being, I need you to let me go. Let me live inside your heart, so you might live with liberty once more, free from all this death. I’m not in pain, only seeking your happiness. Dedicated to mothers who’ve lost their sons…
Ricky
Words cannot describe how much you inspire us all Ricky, you give us such hope, I commend your parents who have raised an amazing, caring, kind and beautiful Man, Your honesty I find very refreshing and helpful to make us all realize what is really important in life and in particular the lives of our boys & girls who have DMD.
My heart at this moment is with Amy who is at this point in time feeling the most heartbreaking pain of all, watching her young son Joshua’s life fade away with every moment, My love and prayers are with this family and it touches my heart the amount of support they are receiving from our big family. Many other families have been through this same ordeal and my thoughts are with you all as I know seeing other families go through this ordeal is like reliving it all over again. I just wanted to say how very proud I am to call you all my extended family and very proud of how we have all bonded together to give each other love and support, advice and wisdom.
MUCH LOVE TO YOU ALL XX
