In 1987 my family was given some heartbreaking, earth shattering news. My little brother who was 7 was Diagnosed with Duchenne Muscular...

Well yesterday how little man Kye had a clinic visit. These visits involve getting up around 5 am to drive 3 hours through relentless...

I often feel very in ore of single parents who are dealing with DMD daily. You are all amazing to me, I can only imagine how hard it must...

Having a child with Duchenne there are small things that really can be heartbreaking, things that are not anyone’s fault, and we are not...